New Beginnings!

Last night went much better than expected. I set the alarm for 4:00 a.m. and got up and went in Kaylea's room and turned the light on. I let her wake up and stand up and i got her out of her bed. I turned all of the lights on in her bedroom and the living room and kitchen so that it would be nice and bright. She sat with me in the recliner for a long time playing with a book. We watched Celebrity Poker on Bravo. LOL Around 6:30 a.m. we went and woke DH up and I took a bath. Then he took a shower and before we knew it it was 7:30 and we were on our way. We went to the hospital and waited for a while. They finally called us back around 8:30 or so and we went to another waiting area. We sat in there at least another 30 minutes. DH took Kaylea out in the hospital halls and let her just run around. She did great for having been up since 4:00 a.m.!!! Then the EEG tech (whom I happened to know) came out and said "Dawn, we're going to have to reschedule the EEG" WTH??? I said, "Um, no we're not. I'm not getting her up at 4:00 a.m. and sitting up all night with her." Anyway, there was a little bit of confusion but I got our doctor on the phone and it was a go. We took her in the room, gave her a bottle, and she was out like a light! She slept through the whole thing! She was such a big girl. I guess we won't find out anything until Monday or Tuesday on the results. I just pray everything is ok and we can get her off of this medicine!

In the meantime, I couldn't help but think about Drew all night! This was his first night away from home! Dh and I were in the bed and I couldn't quit talking. I would say "I wonder how Drew is doing", "I wonder if he's gone to sleep yet", "I hope he sleeps ok for my mom", etc. I know dh was like "Shut up and go to sleep!" LOL My mom said Drew did great. He only woke up one time and went right back to sleep. She said that the minute he woke up, he got up and went straight for the piano. LOL He LOVES my mom's and stepdad's piano! That's practically all he does while he's there.

All in all, it was a great and smooth night and day. Very unlike what i had in my mind! I told my mom that since Drew passed the test of staying away from home that they're gonna have to keep him more often. LOL I doubt that will happen, but we shall see!

Good Intentions!

I had such good intentions when I began this site. It was supposed to be a journal for all of our family and friends to keep up with us. I made 3 lousy posts and that was it. That's pretty pathetic. So, here's to another try.

Drew and Kaylea are such joys in our lives. They say after children you don't remember what you did before them. Well, that hasn't hit, but i wouldn't change a thing! Watching them grow and learn something new everyday is so much fun. Watching new steps, new teeth, new attitudes, all this new stuff is what Shane and I made. Amazing!

Drew has been trying to walk now for several weeks now. He can walk across the house now but still isn't very confident about it. And he's still wobbly. He's only stood up in the middle of the floor a time or two and started walking, otherwise, he starts by holding on to something. Boy, we never thought this day would come and it has! He's such a happy boy. And the telephone is his new best friend. He is so darn funny. He'll put it up to his ear and it sounds like he's saying "Hello" and he just babbles off a conversation. It's hilarious.

Kaylea is her same ole self. Just as independant as ever. Ever since vacation she (and Drew) has been a little monkey. Climbing in the glider rocker, on the couch, standing up on the bed. Whew! It's enough to give you a heart attack.

They've started really loving to play on their bean bags. They'll just walk up to them and fall on them and just laugh. They'll go back and forth. Drew will be on one and Kaylea on the other and then they'll switch.

I sent a picture to the NNICU where they were for so long. It was a picture of them in their beach chairs on the beach on their first vacation. I haven't heard from anyone to see if they got it. Hopefully they did. We are still so thankful for everything that they did for us. I just hope they don't think i'm a freak for sending them a picture! I mean, we've been gone over a year now. I know their primary nurses were happy to see it. The rest of the nurses probably just think i'm nutso!

Tomorrow is Kaylea's EEG. We've got to keep her up from 4 a.m. until 8 a.m. because the EEG has to be a sleep deprived one. Boy is this going to be a fun night! A little recap as to why she's having this done. While in the NNICU when Drew and Kaylea were having trouble eating they wanted to make sure that it wasn't something neurological so they did an EEG on them. Drew's was fine and Kaylea's had 10 seconds on there that was questionable. So, they put her on phenobarbital just in case there was something going on. Ends up that they were allergic to their formula. Anyway, she's been on this medicine ever since and I want her to come off of it if she doesn't need it. Primarily because it's a narcotic. To grow out of the dosage she would have to be 30 pounds and that seems as if it'll never get here. So, in order to wean her off, the dr has ordered another EEG. Never would i have imagined that it would be a sleep deprived EEG. Ughhh...so, that's where we are. Hopefully the night won't be that bad and we'll have it done and we'll be able to get her off of that medicine. That's the only medicine that she's on and Drew isn't on any. They've both had one additional EEG and both of their's were fine.

Boy, are we lucky! And boy have we come a LONG way from when we came home with them. I can't even begin to remember how many meds they were one. It was several on each baby. I've got it written down somewhere.

I'll update tomorrow on how the night went. Sending prayers above that it's not as bad as i think it's going to be!