Frustrated!

We went for Drew and Kaylea's 18 month check up on Friday. It went really well. Their ears look fine and everything went great. Other than they are still underweight. Are these kids ever going to gain any weight? Kaylea weighed 17 pounds 10 oz and Drew was an even 17 pounds. Which makes no sense whatsoever! He eats 2-3 times more than she does and she's always ahead of him in weight. The doctor is fine with it though. They are 30 inches long. They are on the 25th percentile for their height and 2 percentile for their weight.

I'm really frustrated this morning. I have everything that we need to know in order for the neurologist to tell me how to wean Kaylea off of the phenabarb. He is an hour away from us. I finally got the nurse this morning and she tells me that we must come in to see the dr for him to "go over the test and tell me how to decrease her meds" What?? I've got the test results right in front of me. Why can't he just look at the same paper that i am looking at and tell me how? Now i have to round someone up to either go with me with both kids or find someone to stay here with Drew while i take Kaylea. Ughhhh...can't anything be smooth? Of course, it all boils down to $$. These stupid doctors want to be able to charge for an office consult in order to talk to me. Ughhh...it just infuriates me! I told the nurse that i have both the EEG results and the phenabarb blood level and she asked me where i got it and that i didn't need to have that until the dr went over it. Excuse me? These are results of whether or not my child is having a seizure or not and you're telling me i don't need them until the dr can go over them with me. Please! I told her that we pay for those tests and they are our medical records and that i have every right to have them. She said that they could get Kaylea in tomorrow to see the dr. Of course, that's the one day our of dh's schedule that he has a meeting. And the one day that his mother isn't able to come over that morning. Geez. So, i'm not sure what we're gonna do. The next appt that they have isn't until Sept 15th and i definitely don't want to wait that long.

On another note, our Sunday School teacher and great man in our community doesn't seem to be doing very well. He was diagnosed with Stage 4 liver cancer 3 years ago. They only gave him 6 months to live in the beginning. His unbelievable faith in God has gotten him through 3 years of treatments and he's just now beginning to feel the effects of it. His body just isn't holding up like it was. We rec'd an email from him last night stating that he was going on down to the oncologist tomorrow instead of waiting another 3 weeks for his regular followup appt. It's the first email that has really sounded as if he's unsure of what's to come. I'm praying that his bone scans that he gets tomorrow doesn't show what he thinks it will show. His family needs our prayers!

Picky, Picky, Picky!

I took Kaylea to the speech therapist. The ST asked me a lot of questions on background info and then give Kaylea several things to try. Crackers, ice, pudding, etc. She ate all of it with no problem. The ST said that she definitely doesn't have an adversion. She thinks it's just stubborness. haha...she didn't use that word. I think she used strong minded. Anyway, she is going to come one time per week and see if she can work with her. She says that she has ways of "tricking" kids into eating something that they never wanted before. All I can say is GOOD LUCK. But I definitely want her to come! It definitely won't hurt anything.

Drew has been a little whiney the last day or so. Not sure what's up with him. I just hope it's not his ears. And speaking of ears. Kaylea has not slept well for the past week or so. That's usually a sign that it's her ears. We go to the pediatrician for their 18 month check up on Friday. I'll have her check both of their ears out to see what she says. In the meantime, i'm not looking forward to the visit. Although it will be a bitter-sweet one. It's the last round of shots until they are 4!!!!! YAY!!!! I'm so glad of that. I'm sick of shots/vaccinations!

Terrible 2's???

Are they coming??? Ughhhhh....Kaylea is getting sooooo rebelious!! I just want to wear her tail out sometimes. Well, and sometimes i do and it just doesn't phase her. I think she's numb to pain. She is in the climbing stage and is climbing on everything! In the recliner (and when she can't quite make it she throws a tantrum), in the glider, if there's a table next to the chair that she has climbed in, well, she climbs on that. The girl has no fear at all! We covered our hearth at our fireplace with fabric and she climbs on it and tries standing up. She tries standing up in the chairs too. Ughhhh....she can't be left alone for 2 seconds or i'm afraid that she will break her neck! The bad thing is, she'll just look at me when she starts to do it. It's like she saying in her head when she looking straight at me and is saying "i'm about to stand up so just watch. i know you don't want me to and maybe you won't even notice if i do it very slowly" Who knows. I guess this too shall pass.

While we were on vacation we saw a lady that had triplets. Since we were on vacation with another couple that had a one year old, her kids thought that they might be triplets. They walked over to our table and asked if they were triplets and we told them no that my set were twins and that was our friends little girl. She proceeded to tell me that she had 8 year old triplets and that it gets much easier. She said that if i can just make it to 3 years old then it's a breeze. COME ON 3!!!! We were talking about "schedules" and she said that anybody that just has a single baby doesn't know the importance of a "schedule" to mom's of multiples. Boy, was she right. People usually think i'm just being over-reactive when i say "what time will it be or what time do you want to go" and when they say a time that's in their nap schedule I just pass. They are like "can't you just work it to where they nap earlier or later." Ummmmm....nope. Sure can't. I was glad that our friends heard her say that. Their little girl had no schedule whatsoever on vacation. By the end of the vacation she was about on Drew and Kaylea's.

I still haven't heard from Kaylea's EEG. This is just ridiculous! I can't believe how long it is taking. I'm on hold now with the doctors office to see if they have the results. I'm really wanting to get them so that i can schedule a visit with the neurologist so that we can get her off of this medicine. With the assumption that the EEG was fine and she doesn't need it.

We go to a speech therapist on Monday to see if she has any techniques and tricks to see if she can get Kaylea to eat more than she does. She just won't even try anything new and it is soooo frustrating!

Ok, just got a phone call back and the EEG was negative. Thank you Lord!! So, the next step is to get her off of this medicine. It's kindof scary to think about. I mean, she's been on it practically all of her life and it's such a strong medicine. But, this is what i want. I don't want to wait for her to "grow out of it." I want to get her off of it asap. I need to go and get an appt scheduled with the neurologist.