Frustrated!

We went for Drew and Kaylea's 18 month check up on Friday. It went really well. Their ears look fine and everything went great. Other than they are still underweight. Are these kids ever going to gain any weight? Kaylea weighed 17 pounds 10 oz and Drew was an even 17 pounds. Which makes no sense whatsoever! He eats 2-3 times more than she does and she's always ahead of him in weight. The doctor is fine with it though. They are 30 inches long. They are on the 25th percentile for their height and 2 percentile for their weight.

I'm really frustrated this morning. I have everything that we need to know in order for the neurologist to tell me how to wean Kaylea off of the phenabarb. He is an hour away from us. I finally got the nurse this morning and she tells me that we must come in to see the dr for him to "go over the test and tell me how to decrease her meds" What?? I've got the test results right in front of me. Why can't he just look at the same paper that i am looking at and tell me how? Now i have to round someone up to either go with me with both kids or find someone to stay here with Drew while i take Kaylea. Ughhhh...can't anything be smooth? Of course, it all boils down to $$. These stupid doctors want to be able to charge for an office consult in order to talk to me. Ughhh...it just infuriates me! I told the nurse that i have both the EEG results and the phenabarb blood level and she asked me where i got it and that i didn't need to have that until the dr went over it. Excuse me? These are results of whether or not my child is having a seizure or not and you're telling me i don't need them until the dr can go over them with me. Please! I told her that we pay for those tests and they are our medical records and that i have every right to have them. She said that they could get Kaylea in tomorrow to see the dr. Of course, that's the one day our of dh's schedule that he has a meeting. And the one day that his mother isn't able to come over that morning. Geez. So, i'm not sure what we're gonna do. The next appt that they have isn't until Sept 15th and i definitely don't want to wait that long.

On another note, our Sunday School teacher and great man in our community doesn't seem to be doing very well. He was diagnosed with Stage 4 liver cancer 3 years ago. They only gave him 6 months to live in the beginning. His unbelievable faith in God has gotten him through 3 years of treatments and he's just now beginning to feel the effects of it. His body just isn't holding up like it was. We rec'd an email from him last night stating that he was going on down to the oncologist tomorrow instead of waiting another 3 weeks for his regular followup appt. It's the first email that has really sounded as if he's unsure of what's to come. I'm praying that his bone scans that he gets tomorrow doesn't show what he thinks it will show. His family needs our prayers!